European Information Network - Ethics in Medicine and Biotechnology
A project of the European Commission,Quality of Life and Management of Living Resources Programme
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European Information Network - Ethics in Medicine and BiotechnologyA project of the European Commission,Quality of Life and Management of Living Resources Programme |
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If you require further information, please contact the organizers directly.
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| Date: | 14.11.2016 to 15.11.2016 |
| Location: | University Medical Center Goettingen
Lecture Hall MED 25
Von-Siebold-Straße 3
37075 Goettingen Göttingen Deutschland |
| Keywords: | Research ethics - Genetic research/engineering - Medical ethics |
| Details: | Due to increasingly effective technological platforms, sequencing of the human genome is now possible within hours and for less than 1000 Euro. This development has sparked growing interest among clinicians and molecular biologists. Genomic high throughput technologies are frequently hailed as a revolutionary tool that will radically change clinical practice and establish “predictive”, “individualized” or “precision” medicine. The aim is to target rare, clinically unrecognizable diseases or to subtype clinically indistinguishable disorders with a suspected genetic background, e.g., in the oncological context. More and more doctors, patients, and stakeholders are becoming aware of the possibilities of biomarker-based high-throughput analyses. At the same time, the clinical implementation of the rapid technological advances in the field of genomic high throughput sequencing is accompanied by practical difficulties and uncertainties. The interpretation and reporting of genomic findings in clinical practice, e.g., in molecular tumor boards, becomes more complicated. The increasing volume of huge and highly complex data sets also poses problems regarding sustainable infrastructures for management, integration and exploration of genomic sequencing data with other clinical data. And finally, the large pool of sensitive and ambiguous data raises ethical, legal, and social questions that are still in need of clarification, especially regarding informed consent, disclosure policies, and data protection. The workshop brings together experts from the fields of medicine, ethics, social sciences, law, and biomedical informatics. The aim is an interdisciplinary discussion of the challenges posed by clinical applications of genomic high throughput sequencing. |
| Organizer: | GenoPerspektiv Consortium |
| Contact: | Prof. Dr. Ulrich Sax Address: Universitätsmedizin Göttingen Medizinische Informatik Robert-Koch-Str. 40 37075 Göttingen Tel: 0551-39-172504 Fax: Email: ulrich.sax@med.uni-goettingen.de |
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